- Universität Zürich > Medizinische Fakultät > Kinderspital Zürich > Neuropädiatrie, Abteilung > Prof. Dr. Eugen Boltshauser
- Boltshauser
Completed Research Project
- Title / Titel
- Neurofibromatosis 1 and quality of life in children and adolescents
- Original title / Originaltitel
- Lebensqualität bei Kindern und Jugendlichen mit Neurofibromatose 1
- Summary / Zusammenfassung
- We have recently shown that quality of life in children and adolescents with neurofibromatosis 1 is impaired. As a consequence of this finding we are offering families with an affectd child a psychological counselling, in addition to the conventional medical assessment. We will test by interviews / questionnaires the effect of this intervention. The study will be conducted over a two year period.
- Publications / Publikationen
- Graf A, Landolt MA, Capone Mori AC, Boltshauser E: Quality of life and psychological adjustment in children and adolescents with neurofibromatosis 1. J Pediatr 2006;149:348-353
- Keywords / Suchbegriffe
- Neurofibromatosis 1, Quality of life
- Project Leadership and Contacts /
Projektleitung und Kontakte Prof Eugen Boltshauser (Project Leader) eugen.boltshauser@kispi.uzh.ch PD Markus Landolt markus.landolt@kispi.uzh.ch lic phil Anna Graf anna.graf@kispi.uzh.ch
- Funding Source(s) /
Unterstützt durch - Foundation
- Duration of Project / Projektdauer
- Jan 2007 to Oct 2009