Boltshauser

Fakultäten » Medizinische Fakultät » Kinderspital Zürich: Medizinische Klinik » Neuropädiatrie, Abteilung » Prof. Dr. Eugen Boltshauser (emeritiert) » Boltshauser

Completed research project

Title / Titel	Neurofibromatosis 1 and quality of life in children and adolescents
PDF	Abstract (PDF, 14 KB)
Original title / Originaltitel	Lebensqualität bei Kindern und Jugendlichen mit Neurofibromatose 1
Summary / Zusammenfassung	We have recently shown that quality of life in children and adolescents with neurofibromatosis 1 is impaired. As a consequence of this finding we are offering families with an affectd child a psychological counselling, in addition to the conventional medical assessment. We will test by interviews / questionnaires the effect of this intervention. The study will be conducted over a two year period.
Publications / Publikationen	Graf A, Landolt MA, Capone Mori AC, Boltshauser E: Quality of life and psychological adjustment in children and adolescents with neurofibromatosis 1. J Pediatr 2006;149:348-353
Keywords / Suchbegriffe	Neurofibromatosis 1, Quality of life
Project leadership and contacts / Projektleitung und Kontakte	Prof Eugen Boltshauser (Project Leader) eugen.boltshauser@kispi.uzh.ch PD Markus Landolt markus.landolt@kispi.uzh.ch lic phil Anna Graf anna.graf@kispi.uzh.ch
Funding source(s) / Unterstützt durch	Foundation
Duration of Project / Projektdauer	Jan 2007 to Oct 2009